Vitiligobiobank.org and the VR Foundation do the utmost possible to protect the privacy of each individual who contacts us and/or visits our websites. We offer you our heartfelt thanks for your visit and hope you continue to gain valuable information from this tool. We provide this page explaining our information practices and the way your information is collected and used in the interests of protecting your privacy.
In order to provide our users with the best possible experience on vitiligobiobank.org, we collect information about all visitors to our site, such as the number of visitors, which pages they access, the length of their visit and where they view the site from. This type of information is only shared outside the vitiligobiobank.org and the Vitiligo Research Foundation as anonymous, compiled data, and in no way includes any information that could identify and individual in any way.
We collect information such as your name, postal address, phone number and e-mail address when only when you choose to share that information (when you request information from us, make a donation, or contact us offline). This information is used to provide you with any information or materials that you request from us. If you provide your postal or e-mail address to the vitiligobiobank.org, you will receive postal and e-mail communications from us. We also collect demographic and profile data from our website and in our databases. We use the data you provide to customize your experience on our website, and to develop programs and services that might be of interest to you. Your information is never shared, in any way, with third parties without your express permission.
We may send out electronic and other communications to vitiligobiobank.org users to highlight news, information and opportunities available from the vitiligobiobank.org or the Vitiligo Research Foundation. You can choose not to receive any form of communication from us simply by contacting us at email@example.com.
Vitiligobiobank.org, like many other nonprofit websites, occasionally makes only our constituents' names and postal addresses to companies occasionally (predominantly other nonprofit organizations). We carefully screen these organizations. These practices help us reduce the cost of reaching more individuals with information about vitiligo.
You can request that we do not share your information by e-mailing us at firstname.lastname@example.org. If you use more than one e-mail address or postal address, please identify each one.
We will also share such personal information when we believe release is appropriate to comply with the law, enforce our rights, or protect the safety of our constituents or others.
Vitiligobiobank.org uses personally identifiable information to help provide the most appropriate and thorough answers to questions. For example, vitiligobiobank.org may use an email address to seek more detailed information in order to answer a question.
Additionally, when visitors come to our site, we may passively collect certain non-personally identifiable computer information. This information may include the user's: type of computer operating system (e.g., Windows 7 or Mac OS X Snow Leopard), the user's IP Address, the user's web browser (e.g., Mozilla Firefox or Internet Explorer), the frequency with which users visit various parts of our sites, and information regarding the user's Internet service provider. We do this in order to improve website performance and to make our sites more interesting and useful to you, as well as for various purposes related to vitiligobiobank.org website operation. We may collect this non-personally identifiable information through the use of software technologies such as unique identifiers or "cookies." Cookies are small text files that we place in visitors' computer browsers to store their preferences. You can choose to have your computer warn you each time a cookie is sent, or you can choose to "turn off" the acceptance of cookies from any website. If you turn cookies off, you won't have access to many features that make your Web experience smoother, and some of our services may not function properly.
We may disclose information where we are required to do so by law, for example, in response to a court order or subpoena, or for any other judicial process. We may also disclose information where it is considered reasonably necessary to protect the safety of any a participant on this Website. We may disclose information to service providers or other affiliated companies who provide support for the operations of our website and who we believe do not use or disclose the information for any other purpose. To the extent permitted by applicable law, we also may disclose personally identifiable information in response to a law enforcement agency's or other public agencies (including schools or children services) request or if we feel that such disclosure may prevent the instigation of a crime, facilitate an investigation related to public safety or protect the safety of a child using our website, to protect the security or integrity of our website, or enable us to take precautions against liability. When possible, we will use reasonable methods of providing parents notice of this disclosure.
Collection of Information for Third-Party Sites and Sponsors. Information about children is not collected for marketing purposes, and it is not disclosed to third parties. Nor do we allow third-party companies to advertise to our users. We intend to keep this site free from direct advertising.
In order to prevent unauthorized access and protect our users' personal information, we strive to maintain physical, electronic and administrative safeguards to secure the information we collect online.
Or write to us at
1 Penn Plaza,
36th Floor, office 3606
When contacting us, please be sure to provide us with your e-mail address and a telephone number where we can reach you.
Unless you so request, any personal information that you provide in communications to the above e-mail and postal mail addresses will not be used to send you promotional materials.
Approved by the Board of Directors, March 25, 2014